About Eddie's Fund

In 2006, our 10-year-old son had a bone marrow transplant. While recovering in isolation at home, he determined to do something to help a bone marrow transplant family we had met while in the hospital. Something to help his new friend, Eddie. We started Eddie's Fund that week, and seven years later, as Eddie continues his post-transplant recovery and waits for a double lung transplant, our family of five continues to raise funds for Eddie and his family. 100% of all donations to the Fund are paid directly to bill companies to help Eddie's family financially manage the intensity of Eddie's recovery. On behalf of Eddie and his family, we thank you for offering hope and help and joining with us to support our buddy, Eddie.

Friday, July 25, 2014

Farewell to Eddie's Fund

Dear Friends of Eddie's Fund,

This morning I will write the final three checks from Eddie's Fund; when those checks clear, I will close the account and Fund entirely. (Below, the photo of the many-years-old Eddie's Fund checkbook I've carried with me through three house moves since Eddie's Fund began)

On the one hand, this is a sad day, because despite so many of our hopes to the contrary--that one day, Eddie's family would not need the Fund because he would be healthy and his family would be resuming a hospital-free life--Eddie is no longer with us. In August, Kori will mark the six-month anniversary of Eddie's passing; writing the final checks today means the Fund is not necessary in the least desirable of ways. It's not fair. It sucks. It is a tragedy in every way. And while Kori and Marshall grieve, so many of us continue to wonder what sense can be made of so much suffering to so innocent a boy.

On the other hand, this is also a day for celebrating. I will sign checks this morning through tears, yes, but many of those tears will be tears of gratitude, and even joy. I am grateful that Eddie's life brought me a friend as resilient, as hilarious, as caring, and as close as Kori. I am amazed when I think about the hundreds of people who have been connected through Eddie's Fund--at first, my family and some close friends, and then some folks who had never even met Kori, and then folks I've never even met, and former students, and teenagers, and little kids having birthday parties and hosting small fundraisers and collecting donations. A print shop and a mural artist. A bone marrow drive at one of our fundraisers which resulted in a good friend actually donating bone marrow to a stranger in the hopes of saving a life. The webs of connection--beautiful, silky threads of love and kindness--have been felt by so many of us. These threads have dared to glisten with light on really, really dark days; they have taught us that instead of asking, "Why Eddie?" we might better ask, "How?" How can we help? How can we love better? How, then, do we all live, now that we are so aware how short and precious is this life?

Today I'll cry because since April of 2008, when I wrote the first official check from Eddie's Fund, you have donated more than $42,000 to Eddie and his family. The donations came by the tens of dollars, and sometimes by the hundreds, though not as often. This means many, many of you gave what you could and more than once, trusting that your gifts--no matter how small--could be a drop in a greater ocean. And they were. You have kept Kori's car on the road for their trips back and forth to Jimmy's Fund and Children's Hospital. You have paid medical expenses, made sure their apartment had light and heat, and purchased food for them when their cupboards were bare from too many weeks in a hospital room. In every tangible way--delivering meals, shoveling snow, giving them an EasyPass, sending cards and gifts--you have been LOVE to them. How can I wallow in grief today, in the light of so many, and so real, and such beautiful, gifts?

Thank you, dear friends. You have loved well. I couldn't be prouder to have loved alongside you during these years.

And thank you especially to my dear, dear friend Kori. You have been one of my life's greatest teachers, providing me as you have with a vision of loving, grieving, dying, and living, a view I cherish. I have tried my best to use that vista to bring you light, hope, and love, and despite my failings at doing so, you love me still. What you need to know today is that I love you, I am amazed by you, and I will continue to watch trashy TV shows as long as I have you to help me make fun of them. Thanks for being a darkly hilarious, seriously big-hearted, super-mom friend. Here's to standing on hospital furniture, swearing at hospital TVs, staring at brick walls, eating when we're stressed, scavenging for pillows, yelling at nurses to GET OUT, crying at Bertuccis, living in yoga pants, paying too much for parking, visiting Au Bon Pain in the wee hours of a morning for "second supper," feeding coins to hospital laundromats, losing our sanity while isolated, holding puke buckets, counting blood cells, and surviving it all with a friendship we couldn't possibly explain.

And here's to all of us, Eddie's Fund friends! May the connection and love we experienced through the Fund endure as a tribute to Eddie's life; may we find some new family, some new suffering, some new hospital room, into which to bring light.

On behalf of Kori and her amazing family, thank you. A million times, thank you. My heart is full, and I know Kori's is, too.

Love Remains.

With love,
Melissa Winchell, writing one last time for Eddie's Fund

Thursday, June 26, 2014

Change in Plans

Dear Supporters of Eddie's Fund,

After talking with Kori today, we've decided to postpone our Eddie's Fund celebration, originally scheduled for July 26, indefinitely. Kori begins a new job next week and both she and Marshall continue to be sick off and on this month. It's just a lot to try to add an event to a month in which so much is happening for them.

Thank you for your understanding, and as always, your support. We can cheer Kori on in other ways this month as she makes her return to the working world! I am so happy for her.

Please remember that the Fund will not accept donations after July 30th. If you are a monthly contributor to Eddie's Fund, you will want to stop your support next month. On August 1st, all funds remaining in the account will go directly to Kori to help her continue to get up on her feet. I anticipate that this will be about $1,000. If you'd like to leave the family with more remaining funds, please feel free to donate one last time before July 30th.

I hope you'll continue to support Kori and Marshall with your friendship and love as they continue to grieve while also working out a new life together. I am speechless--really, so overwhelmed--when I think about the outpouring of love you all have given through the Fund in these last 7 years. Thank you, dear friends.

With admiration,
Melissa

Friday, June 13, 2014

Update & Eddie's Fund Party Invite

Dear Friends,

I know many of you now follow Kori personally on Facebook, so I often neglect to write here, wanting for Kori mostly to be able to speak for her own experience, which is hard and personal in so many ways.

As Kori moves forward--she hopes to begin a new job next week--we continue to collect any final donations for the Fund, which will close on August 1. I've been able to meet with Kori nearly every week since Eddie's passing--last week, we met at the hospitals, and I was witness again to Kori's bravery as she faced down the trauma of the day Eddie died, and triumphed. She is extraordinary, and I'm so grateful to know her, and to have shared our friendship with so many of you.

Eddie's Fund has been paying many bills for Kori in these last months, and we will do so through August 1st to allow her to get on her feet as she transitions into a full-time job (which one of our own Eddie's Fund supporters helped her to find--you guys are amazing!). We've even been able to splurge on some extras to encourage Kori and Marshall toward health--thanks to those of you who consulted with me on these expenditures--including a really cool (and, we hope, healing) camp experience for Marshall this summer.

I am hosting an Eddie's Fund party in my backyard as a final gathering of all of us--a way for us to give Kori hugs again and to mark a closing of a season in her life, as we send her on her way to financial independence with our love and encouragement. Wouldn't it be great to all be together to celebrate Eddie's life and the way he has connected us all? All of you who have supported Kori and her family through Eddie's Fund are invited to attend on Saturday, July 26 at noon. Please email me for details at mnwinchell (at) hotmail.

Happy summer, dear friends! Thanks for all you continue to do to share your life and love with Kori and Marshall. I appreciate you!