Eddie's Fund: August 2011

About Eddie's Fund

In 2006, our 10-year-old son had a bone marrow transplant. While recovering in isolation at home, he determined to do something to help a bone marrow transplant family we had met while in the hospital. Something to help his new friend, Eddie. We started Eddie's Fund that week, and seven years later, as Eddie continues his post-transplant recovery and waits for a double lung transplant, our family of five continues to raise funds for Eddie and his family. 100% of all donations to the Fund are paid directly to bill companies to help Eddie's family financially manage the intensity of Eddie's recovery. On behalf of Eddie and his family, we thank you for offering hope and help and joining with us to support our buddy, Eddie.

Sunday, August 21, 2011

thanks...and keep praying

Moriah had a profitable birthday season! After 3 (that's right, count 'em, THREE) birthday parties, we were amazed and humbled to realize her celebrations had raised over $700 in contributions to Eddie's Fund! Thank you to our family, friends, and Down syndrome support group for loving on Eddie on Moriah's (and our) behalf!

Please do keep Eddie in your prayers. On Wednesday, Eddie will undergo yet another surgery--this time, for his mouth, which has been damaged by GVH (bone marrow rejection) disease. Because his mouth cannot open very far, it's become increasingly difficult for Eddie to eat, and in the last year, we've watched as Eddie's weight has plummetted. While we have hope that the surgery will help, the doctors are opting to begin G-tube nutrition in the meantime. As you can imagine, our family, and Eddie's, are really upset by this news, as it represents a setback for Eddie.

And yet we continue to be encouraged by the many ways so many of you continue to think of Eddie. Unsolicited donations at Moriah's birthdate and birthday parties, online contributions, coffee purchases, and an upcoming wedding donation...these help Eddie's mom to continue on to support Eddie's brave fight. Thank you, friends. This week, he needs your prayers. Thank you again for joining with us to love our dear friend.