Eddie's Fund: January 2014

About Eddie's Fund

In 2006, our 10-year-old son had a bone marrow transplant. While recovering in isolation at home, he determined to do something to help a bone marrow transplant family we had met while in the hospital. Something to help his new friend, Eddie. We started Eddie's Fund that week, and seven years later, as Eddie continues his post-transplant recovery and waits for a double lung transplant, our family of five continues to raise funds for Eddie and his family. 100% of all donations to the Fund are paid directly to bill companies to help Eddie's family financially manage the intensity of Eddie's recovery. On behalf of Eddie and his family, we thank you for offering hope and help and joining with us to support our buddy, Eddie.

Wednesday, January 29, 2014

Holding on to hope

Dear Eddie's Fund supporters,

Many of you have already seen the photo of Eddie Kori posted this morning on her own Facebook wall; I'm including it here. They're on their way into Boston today for another full day of appointments. As you can tell from the photo, Eddie isn't well--he's sleeping much of the time--and the family continues to wait for lungs for him.

There's added obstacles on this front; because of Eddie's age, the transplant Board won't allow Eddie to receive pediatric lungs, even though those are the only ones that will fit his body. Eddie's doctors have appealed and Eddie and his family are waiting to hear whether they will win their appeal.

I talked with Kori last night--as always, she remains a person full of light and love. And hope. Always hope.

Thanks for supporting, praying, and sharing your love and hope with Eddie and his family along with us. We appreciate you.

Melissa