About Eddie's Fund

In 2006, our 10-year-old son had a bone marrow transplant. While recovering in isolation at home, he determined to do something to help a bone marrow transplant family we had met while in the hospital. Something to help his new friend, Eddie. We started Eddie's Fund that week, and seven years later, as Eddie continues his post-transplant recovery and waits for a double lung transplant, our family of five continues to raise funds for Eddie and his family. 100% of all donations to the Fund are paid directly to bill companies to help Eddie's family financially manage the intensity of Eddie's recovery. On behalf of Eddie and his family, we thank you for offering hope and help and joining with us to support our buddy, Eddie.

Friday, February 28, 2014

Our final fundraiser

Dear Friends,

I met Kori for lunch today; we're trying to spend some of our Fridays together when we can. She continues to be amazed--and so appreciative--of all the funds we've raised, and all the support she's received from you.

Before Eddie's lung transplant, I had just kicked off a spring fundraiser via Tiny Tags for Eddie's Fund, and I've decided to resume the fundraiser now that the wake and funeral are behind us. In the last week, your donations have made it possible for the Fund to pay just over $2,000 in funeral costs and the family's monthly expenses, and there is still a bit over $6,000 in the Fund. In seven years, Eddie's Fund has never overflowed to such an extent; your generosity is amazing.

Still, I'm grateful for Tiny Tags for offering this fundraiser to us, and more than that, I want to do all I can in these last 6 months of the Fund (I will close the account on August 1 and give Kori all of the remaining funds at that time) to see Kori through this time of grief and help her get back on her feet. This will be the Fund's last fundraiser.

I love this fundraiser because it is a win-win: you receive a gorgeous gift, and Eddie's family receives the gift of support as they grieve and heal. 20% of every purchase you make will benefit Eddie's Fund; visit www.tinytags.com and enter "Eddie's Fund" as the charity code at checkout.

Please, and thank you.

Monday, February 24, 2014

Your generosity is overwhelming

Dear Friends,

It has been now a little over a week since Eddie passed. And I want you all to know today how much you have done to support Eddie's Fund in that short time. In total, you and your friends have donated just over $6,800. Your donations--and the fundraising efforts of Eddie and Marshall's elementary school--are making it possible to completely pay for the funeral expenses and burial costs. And you are also helping the Fund to give Kori some additional support for the next 6 months as she grieves and begins to put together the meaningful and happy life Eddie would have wanted for her.

Today I'm feeling sad again, remembering Eddie and feeling the pain of the loss for his family and for all of us. But more overwhelming than the grief is your generosity, your love, your kindness, your compassion, and your care.

Thank you, dear friends, for loving so very well this week. May the love Kori and Eddie shared continue to live on through us.

With my thanks,
Melissa

Thursday, February 20, 2014

Eulogy at Eddie's Funeral Mass

Thank you again, friends, for the love you have expressed to Eddie's family and to me this week. I was privileged to give the eulogy at Eddie's Funeral Mass yesterday afternoon. I know many of you were unable to attend, and I want to share my thoughts with you. May we all choose to learn from Eddie's passing what he experienced throughout his life--when we suffer, when we hurt, love remains.


LOVE REMAINS
Funeral Mass of Eddie Rodriguez
Eulogy by Melissa Winchell
February 19, 2014

Kori,

You and I met in the strangest of ways. In fact, “strange” is a really good word for it, because we were two strangers on an elevator in Children’s Hospital when we started talking across the crowd. I remember riding to the basement with you and walking you to the place where you could obtain your hospital ID card—oh friend, what I wouldn’t give for both of us to know so much less about that place!—and leaving you there saying, “I really do hope to see you again.” Later that day, because of a connection through our doctor who recommended that I reach out to the other Mass General family on the bone marrow transplant floor, I slipped a silly junior-high-ish note under the door to Eddie’s room (one of those, “I know you don’t know me but can we be friends?” letters). And I still remember the moment when I opened my door to find you—the friendly and kind woman from the elevator—standing there with my note in your hand. “You’re Rodriguez?!” I remember shrieking, as if I had met a long lost friend. You were. And truly, friend, we could not have imagined that day how our nearly eight-year friendship would feel, and become, destiny.

Kori, there is something very important I want to tell you today, and to say here in front of your family and friends: I think, that when many people look at our friendship, they think that you are very lucky to have me as your friend. Because of Eddie’s Fund and because of your difficult situation these last eight years, they probably assume that I am the giver in this relationship, and that you have benefited more from me than I from you.

They are wrong. In truth, I have received more from you than you will ever know. Befriending you and Eddie has changed my life more than any other friendship I’ve had. For eight years I have been what our Catholic and Protestant friends might call a witness, a privileged witness. I have been witness to your grit and determination, the phone calls during which you’d tell me you chewed out a nurse or doctor and I cheered you along in your advocacy. I have been witness to your silliness and laughter, the way you would laugh with me until we cried, even while sitting bedside with Eddie in a hospital room. I have been witness to your inner strength, your wisdom, your resolve, and your unending desire to make other people’s lives—even when you were so consumed with Eddie’s—happier and healthier. And most of all, my dear sweet friend, I have been privileged to witness the tender, fierce, encompassing, beautiful love you have for Eddie, and he for you.

Truly, Kori, I have never seen a mother and son as connected as you and Eddie have been in these eight years. I have one vivid memory of watching you both during a visit with you in the ICU; as we talked, you pushed buttons and suctioned tubes and adjusted pillows and smeared lotion. What struck me was not that you did those things—I have done them, too, and any mother in our position would do them—but that every time Eddie so much as grunted, you knew, you just knew, what he was asking of you. I remember very clearly that I suddenly felt like I was a complete stranger, watching from the outside something so intimate, so private, so deeply loving. I wasn’t sure I should have been there to witness such a thing, but I didn’t want to leave. I felt something shift in me that day, as I watched the two of you—an opening in my soul, a desire to love as you both did, without pretense or reserve, with all the risk that loving in this mortal world of ours entails.

I am still learning this from you, Kori—how to love. You are a sage, a master, at it; Eddie, too, was in his love for you a wise, loving old man living in a teenager’s body. Eddie worried as much for you as you did for him; it was Eddie who hoped for your future and this year pushed you out the door each week to your college classes. He thanked you often, telling you again and again what a wonderful mom you were to him, and how much he loved and needed you. I have never seen a son—especially a thirteen-year old son—love his mom the way Eddie loved you. Your spirits were so connected, and are still.

On Thursday, as Eddie passed, I was with you and was again a witness, a very privileged witness, to the love between you. As I watched you love, even when the pain felt like it would kill you, I just kept praying that somehow, somehow I would have the courage and the grace to love as beautifully, as wholly, as completely, as unreservedly, as you have. You keep teaching me, friend: Love Remains. Love, as Saint Paul would say, never, ever fails.

And as your friend, I want you to know that I have all the confidence in the world that you are going to navigate through this grief. I know this is true because you have already chosen so very wisely—you, and Eddie, chose love. And even now, you have in greatest measure that which lasts—love. I have seen you access love on dark days of suffering, lean into love when you are falling, breathe in love when you are not sure you can go on. You are well practiced at loving, my friend. And nothing, nothing separates us from love—Saint Paul gives us the reassuring word that not even death can separate us. Nothing can. Because love is all around us. It is here. It is in us. It is in you. Love remains. Love won’t fail you.

You keep saying that Eddie is your angel. In the Scriptures, angels, when they appear in people’s lives, always say the same thing. They say, “Do not be afraid.” And so, my friend, I whisper what Eddie’s spirit and love are whispering to you today: “Do not be afraid.” Love has not left you. Love is here. Love remains. And even if you cannot quite believe it today, I and all of your friends and family gathered here will believe it for you: Love is going to see you through.

I love you the world.

Monday, February 17, 2014

Thank you!

Together you have donated over $5,500 to Eddie's Fund since Friday. Thank you, friends, for standing with Eddie's mom and brother this week during their terrible loss. I am so grateful to you.

Saturday, February 15, 2014

Eddie's funeral

Eddie's funeral will be Wednesday from 10-12 at St. Anne's (290 Jefferson Avenue) in Salem. Please come if you are able and be a part of a community of love and support for Eddie's family.

How you can help

Dear Friends,

So many are asking how they can help Kori, especially monetarily, during this week of loss. Thank you, friends, for your big hearts!

Funeral expenses are going to be a bit over $10,000, and this does not include the cost of a headstone. Kori is receiving about $1500 of support from the hospital and MassHealth; in addition, Eddie and Marshall's school has begun a fund to help with funeral and headstone costs.

I'd love to see the Fund flooded with money this week so that we can accomplish two goals: first, to cover any additional funeral and burial costs Kori doesn't receive from other sources, and also, to support Kori for the next 6 months or so as she takes the time she needs to grieve and figure out next steps.

The truth is, Kori is going to need MORE, not less, support from the Fund this month and in the months that follow. Thanks to Congress (I promise not to get too political here), some of the supports she was receiving are cut in half. She's not asking for money, but in talking with her this week, I've made it my goal to try to pay the following bills for her, if we can, for the next 6 months: her car payment, her rent, and supplemental money for groceries. In total, we need about $700 a month to pay these expenses, or $4200 total, plus any funeral/headstone costs that she doesn't receive from elsewhere (I think we should plan to try to raise another $5 - 10,000), for a total of $9200 to $14200 in the Fund.

The Fund currently has $2100 in it (thank you, dear friends!). Many of you gave yesterday, and you can be sure every cent is going to be used to help Kori through these funeral expenses, and the needs she has for the next handful of months.

We'll also continue with our Tiny Tags fundraiser; after next week, I'll begin re-posting about that.

But for those of you who want to give directly, who have friends who want to give, who have tax returns you don't really need...I invite you to work with us, these last 6 months, to do all we can to see Kori through the grief of the loss of Eddie. To get her on her feet. To love her. Whatever funds we have remaining after six months we will give to Kori, and close the account and this chapter of financial support (she'll be the first to tell you she can't wait to work again) for her and for all of us.

Being Kori's friend has been one of the greatest gifts of my life; however, widening her circles of love to include my friends (and so many now I haven't even met) has been a privilege, and a grace. It has been a "ripple effect" in my life so beautiful I can't possibly thank you each enough.

Thank you for all you're doing to love on Kori and her son, Marshall, in their grieving this week. When I have them, I will post funeral details (most likely, Wednesday morning)and hope to meet and hug many of you there.

Much love, and many thanks,
Melissa for Eddie's Fund


Friday, February 14, 2014

Such sad news

Dear Friends,

As some of you have heard, our friend Eddie earned his angel's wings last night. After receiving his new lungs, Eddie fought for his new life bravely and well until his body could not fight anymore. It was a hard day that was nonetheless touched by the love so many had for Eddie, and he for them.

I'll be posting soon about what the family needs--for now, I'm working with the hospital to gather funeral expenses. And, as Kori transitions to a new life, I want Eddie's Fund to be able to support her and give her some time to make that transition. When I know more about what that means, I'll let you know, and am grateful already to you who have given, and will give.

In the meantime, I want, out of respect for the family's privacy, to hold close my memories of the last 36 hours. I'd like to say here how grateful I am to the family for welcoming me into their spaces of loving and grieving yesterday; I am humbled, so humbled, to have been with them and have so much respect and love for Eddie's family. Please know how much comfort it brought to Kori--and to me--to know that so many of you knew of his transplant, were thinking of him yesterday, and holding on to hope with us. Thank you for grieving with them now, and for walking so courageously and generously with Eddie and his family during these years. As Kori said to me, we are all now responsible for carrying Eddie's legacy with us. May today be marked by the compassion, courage, and spunk Eddie would want for us.

Thank you again for being a community of love to Eddie and his family,
Melissa
www.eddiesfund.blogspot.com